Comments on: The Importance of Children’s Hospitals http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/ The Intersection of Design & Motherhood Sun, 30 Mar 2014 02:13:32 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: CHAMPIONS 2013 - CHILDRENS MIRACLE NETWORK - kirstin roper photography | kirstin roper photography http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-876177 CHAMPIONS 2013 - CHILDRENS MIRACLE NETWORK - kirstin roper photography | kirstin roper photography Thu, 27 Mar 2014 21:18:27 +0000 http://www.designmom.com/?p=42609#comment-876177 [...] is an amazing writer and had some great words about the importance of Children’s Hospitals on Design Mom. These kids got to meet all kinds of celebrities, go to Disney world, meet President Obama, and [...]

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By: Valerie http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-777137 Valerie Mon, 11 Nov 2013 05:08:26 +0000 http://www.designmom.com/?p=42609#comment-777137 We’re veterans of the Monroe Carrell Children’s Hospital at Vanderbilt and The Children’s Hospital of Philadelphia–glowing places with some of the best people on earth who helped our children heal and feel cherished.

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By: Miranda http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-776031 Miranda Sat, 09 Nov 2013 00:12:45 +0000 http://www.designmom.com/?p=42609#comment-776031 What a beautiful summary of these incredible families and the hospitals that have helped them, Amy! I am so happy you were there to hear their stories. You captured them beautifully.

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By: Jill Maas http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774577 Jill Maas Wed, 06 Nov 2013 22:58:14 +0000 http://www.designmom.com/?p=42609#comment-774577 Hi Amy!

Thank you so much for the beautiful article and helping to bring attention to what Children’s Miracle Network Hospitals does for sick and injured children in our communities. My daughter, Ashlyn, has the incredible honor of being the 2013 Pennsylvania Champion. I’m so proud of her and so proud to be part of an organization that does so much good not only for the children, but for their families as well. Before we needed them, I didn’t understand how important they were. So thank you for helping to bring to light how important our member hospitals are. Without them, I am convinced my sweet little girl would not be here.

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By: Amy Hackworth http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774461 Amy Hackworth Wed, 06 Nov 2013 18:04:39 +0000 http://www.designmom.com/?p=42609#comment-774461 Nate, thanks so much! That video is so great, and totally made me cry. Congrats on such a successful project!

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By: Amy Hackworth http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774443 Amy Hackworth Wed, 06 Nov 2013 17:02:02 +0000 http://www.designmom.com/?p=42609#comment-774443 Oh, Nikki, Emma just shone everywhere she went! I have the sweetest picture of her on the dance floor, LOVING LIFE. She’s really inspiring! Thanks for your comment!

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By: Amy Hackworth http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774442 Amy Hackworth Wed, 06 Nov 2013 17:01:00 +0000 http://www.designmom.com/?p=42609#comment-774442 Oh, Sarah, lots of love to you and your husband. I’m so happy your baby is in good hands and the prognosis is so hopeful. It’s wonderful to hear again that you and your baby have been cared for so well by the staff.

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By: Amy Hackworth http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774440 Amy Hackworth Wed, 06 Nov 2013 16:59:03 +0000 http://www.designmom.com/?p=42609#comment-774440 Miggy, thanks so much for your comment and your story. I was amazed at how many other families had an experience similar to yours–THE person who was best qualified to help their child was at the hospital where they received treatment. From heart transplants, to craniofacial issues, to specific types of cancer, I was just amazed at how often the perfect specialist was at their local hospital. Really incredible.

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By: Chris http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774405 Chris Wed, 06 Nov 2013 15:15:33 +0000 http://www.designmom.com/?p=42609#comment-774405 Oh Amy this has been on my mind a lot so thank you for the post!

I have had the opportunity to get involved with my local children’s hospital by donating some design time to help with poster, t-shirt design, etc for their yearly fundraiser, the CHaD Hero. As I worked on the project, I better understood the importance of this money that was being raised. The hospital has red wagons that they pull the kids in between treatments. They have a play room stocked with games, toys, DVDs or maybe they need to download a favorite song to help a patient settle in or sparkly band-aids! Of course, the money goes to more than just buying stuff but what may seem like small things, amounts to money that needs to come from somewhere.

I also had the opportunity to work on the Chad Roar video that Nate mentioned in the comment above. I was blown away by these kids, their parents, and the staff and this video and the world-wide reception has given a power and voice to these people.
It is a sacred place of care and healing and I better understand the reverence you talk about in your post.

My kids haven’t had to be admitted but knowing that a place like that exists and is close to us is incredibly comforting. My family had a team and we ran in the CHaD hero and raised a few hundred dollars. It isn’t much and I’d like to do better next year but I have seen where that money will go and how much some stickers and a ride in that red wagon means to these kids.

I could go on but will stop now. Here is also a link to a blog post I wrote about my experience making the video.

Thanks again for this post
http://www.youtube.com/watch?v=lnG3MKos87A

c

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By: Lisa J. http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774358 Lisa J. Wed, 06 Nov 2013 13:00:55 +0000 http://www.designmom.com/?p=42609#comment-774358 Beautifully written Amy! Just perfect and so inspiring. I am forever grateful to have been your tagalong!

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By: Sarah E. http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774192 Sarah E. Wed, 06 Nov 2013 03:54:52 +0000 http://www.designmom.com/?p=42609#comment-774192 At this moment, my husband and I are at the Children’s Hospital in D.C. with our son, who was born eighteen days ago with a congenital heart defect that wasn’t discovered until moments after he was born. I think it goes without saying that his birth day was a terrifying day for us, but we are so grateful for the kindness and patience of all the staff here; we feel like they’ve taken care of us almost as much as they’ve taken care of our son. He had life-saving open heart surgery at five days old, and the only way we’ve been able to really keep it together is because from day zero we’ve known that he’s in the best hands, and knowing that they’ll continue to look out for him throughout his life — which now has every chance of being as long and as full as anyone else’s. Thanks so much for this!

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By: Nathan Larson http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774187 Nathan Larson Wed, 06 Nov 2013 03:39:57 +0000 http://www.designmom.com/?p=42609#comment-774187 Hi! My name is Nate and I work at Children’s Hospital at Dartmouth-Hitchcock. I was recently involved in the CHaD ROAR project (http://bit.ly/19uV1eZ) with an amazing group of creative professionals, Child Life Specialists, kids, and staff. The video was created as a thank you to fundrasiers involved in CHaD HERO. The fact that this video has gone viral allows us to talk to a much larger audience about CHaD HERO, which is our single largest fundrasier of the year and directly impacts over 60,000 children. In addition, the video has opened up communication with hospitals and families around the world who are all sharing their inspiration and support. Their stories make you realize that we are all in this together. Thanks! N chadhero.org/roar

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By: Nikki Taylor http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774133 Nikki Taylor Wed, 06 Nov 2013 01:59:52 +0000 http://www.designmom.com/?p=42609#comment-774133 Amy! What a beautiful story to honor our Champion Children and the AMAZING work done at all of the CMN Hospitals. Our daughter Emma was on this amazing trip as the 2013 GA Champion. She has been diagnosed with a Mitochondrial Disorder that she faces head on every day of her life. Currently there is no cure and in most cases the disease is progressive. We have been so blessed by our Childrens Hospital in Augusta GA and even more blessed by all the amazing Champions and strong families who shared all of their stories with us. Each Champion story all different with one big connection CMN Hospitals. I can not thing of a better more hard working organization — Thanks again for writing this!

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By: Miggy http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774131 Miggy Wed, 06 Nov 2013 01:55:16 +0000 http://www.designmom.com/?p=42609#comment-774131 I could write a lot about this so I’ll try to keep it brief.
With our second daughter we were very, very fortunate to live near one of the best children’s hospitals in the country in Cincinnati (who knew?). My husband was doing a 2 year residency there and it really felt completely serendipitous that if we were going to live anywhere and give birth to a child with very rare anomalies, we were very fortunate to live there. Everything from early prenatal visits, to postpartum care, surgeries and many, many specialists, and even therapy was all done through that amazing hospital. I can’t tell you how well taken care of we felt there–especially during that very crazy first year.

We moved when she was a year old to Texas. As we navigated the military medical system we were finally lucky enough to be referred to a Children’s hospital in Dallas. For my daughters specific condition this. was. the. place. I had been so nervous about our first visit and the minute we walked through the door it was like we were transported to another world. Since my husband couldn’t go that first time I remember coming home to tell him all about it–how great it was, how smoothly it ran and how wonderful everyone who worked there was–from the Dr’s to the janitors. I finally said, “I feel like I just visited the Emerald City and the Wonderful Wizzard of Oz.” I really can’t say enough good things about the work these hospitals do.

Anyway, I LOVE that you wrote this post, and truthfully I feel guilty that I haven’t done more in the way of fundraising. It honestly never crossed my mind. But like you said, these hospitals run on the generosity of others and I am so grateful they do. I’m going to think about ways we could be of more support to these wonderful institutions.

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By: Amy Hackworth http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774099 Amy Hackworth Wed, 06 Nov 2013 00:14:49 +0000 http://www.designmom.com/?p=42609#comment-774099 It was so wonderful to meet you, too, Julie. We continue to think about your family’s story and what a great, great mom you are. Thanks for you kind words!

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By: Julie DiBona http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774052 Julie DiBona Tue, 05 Nov 2013 22:27:58 +0000 http://www.designmom.com/?p=42609#comment-774052 Hi Amy! What a beautifully written piece of work! My daughter Brooke is the 2013 Champion from MA. Having a child diagnosed with cancer was completely devastating! Thank God for Children’s Hospitals and for Children’s Miracle Network Hospitals for not only saving my daughters life but for helping to save our family as well. It takes a huge toll on the moms and dads and siblings. From meals to toys to counseling they offer it all! Never mind the researchers who tirelessly work to find new ways to treat diseases and find cures. I could go on and on about our positive experiences. Thank you for bringing this very important cause to the attention of your fans! By the way, it was a joy to speak to you and your sister, she is in my prayers:)

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By: Amy Hackworth http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774020 Amy Hackworth Tue, 05 Nov 2013 21:05:42 +0000 http://www.designmom.com/?p=42609#comment-774020 98 days! Amazing, Susan. I’m thankful, too, for these great people who are doing such amazing work!

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By: Amy Hackworth http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774019 Amy Hackworth Tue, 05 Nov 2013 21:04:31 +0000 http://www.designmom.com/?p=42609#comment-774019 Thanks for pointing that out, Emily. It’s a great time of year to be thinking of helping others!

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By: Amy Hackworth http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774018 Amy Hackworth Tue, 05 Nov 2013 21:03:39 +0000 http://www.designmom.com/?p=42609#comment-774018 Gregg, thanks so much. What a nice compliment. I loved meeting your family and hearing about your dedication to spreading the word (on the racetrack and at lots of other places). And of course I was so inspired by yours, Shannon’s, and your daughter’s bravery, faith and miracles!

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By: Susan Marks http://www.designmom.com/2013/11/the-importance-of-childrens-hospitals/comment-page-1/#comment-774011 Susan Marks Tue, 05 Nov 2013 20:50:32 +0000 http://www.designmom.com/?p=42609#comment-774011 After 3 extra-healthy kids, and many years teaching natural childbirth to dozens of couples, my fourth child was born with an intestinal birth defect that threatened her life. She entered our local children’s hospital at day one and didn’t leave for 98 days. It became the center of our life for those three months. As I tell my friends, “I don’t care if I ever have to go back there, but I sure am glad they were there for me when I needed them!” From the first nurse’s aid to the last surgeon, we were treated honestly and with great care. Thank heavens for the great folks that make up the children’s care network in our country. And I hope they can survive the disaster that faces our health care system and come out the other side as competent and caring as they were then.

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