Comments on: Birth Story from Shawni Pothier http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/ The Intersection of Design & Motherhood Tue, 13 May 2014 21:56:24 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: Maria http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-450944 Maria Tue, 02 Apr 2013 04:28:11 +0000 http://www.designmom.com/?p=4211#comment-450944 Both my brother and sister have BBS. All I can tell you is to teach Lucy independence and allow her to live a normal life, this is easier said than done. My two siblings live in their own aparyment and both work, my brother has a seeing eye dog who is his biggest joy. Both are the happiest people I know, seriously, they are all smiles and laughter. It is hardwrenching to think of them crossing a busy street or taking public transportation, but that lifestyle allows them to never feel handicapped, just normal with a “cool” dog. Both are in their 40′s and doing great. Don’t fear for Lucy’s future she will be just fine. Big hug from my family to yours.

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By: katie press http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-396286 katie press Mon, 15 Oct 2012 01:52:51 +0000 http://www.designmom.com/?p=4211#comment-396286 hi…..your blog is beautiful….i have a 6mnth old that was just diagnosed with bbs and as you would know i am going through all sorts of emotion.
The uncertainty gets to be the most…not knowing when everything with start popping up with her kidneys and eyesight.
how is lucy doing know? how old is she?
i would love to ask you a million questions only if ur okay with that
katie press

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By: becky http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-254808 becky Wed, 09 Mar 2011 02:22:06 +0000 http://www.designmom.com/?p=4211#comment-254808 Your blog is beautiful. Thank you for sharing your journey. I have RP and agree, there are some amazing experiences in this journey as well as some times of grieving.

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By: Grace http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-41339 Grace Sat, 19 Jun 2010 13:05:10 +0000 http://www.designmom.com/?p=4211#comment-41339 Thank you for sharing your story. I”m sure you have helped many other families that are grieving when they find out that something is ‘wrong’ with their child. I’m a Speech-Language Pathologist and often work with families that have a child with special needs in one form or other so i see some of the struggles firsthand. You have such a positive attitude and great motivation and that will help your little girl tremendously.

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By: Melea http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-37243 Melea Fri, 21 May 2010 06:49:54 +0000 http://www.designmom.com/?p=4211#comment-37243 Thank you for sharing your family’s beautiful story. I agree with all your conclusions about the hidden blessings in these challenges. My husband and I have been blessed with 8 children…and have decided that really, we all have our “syndromes” –strengths and “handicaps” or delays…and they are all blessings. These heartaches and challenges can turn our hearts to God and each other in a different way than anything else, and I am truly grateful for them. As the years pass, you will also find that you and your children have an understanding, tolerance and empathy for the challenges of others’ that could be gained in no other way. Thank you for sharing, and reminding me:)

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By: Caddy Shap http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-36502 Caddy Shap Mon, 10 May 2010 06:50:45 +0000 http://www.designmom.com/?p=4211#comment-36502 Lucy has vision beyond sight!… and so do you! :) The Lord works in mysterious ways to bless and help us grow. I’m sure this has been a great blessing for you amidst the great challenge of faith!

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By: Kate The Great http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-36469 Kate The Great Mon, 10 May 2010 01:26:03 +0000 http://www.designmom.com/?p=4211#comment-36469 I know how you feel, Shawni. Or more specifically, my parents know how you feel. I have Usher’s Syndrome, and the cure for the eyesight part of my genetic disorder is being funded by Foundation Fighting Blindness, too. I raised money through a VisionWalk last year as well.

I also worry fr my child. I don’t know whether he has the same disorder I do.

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By: Jill http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-36409 Jill Sun, 09 May 2010 05:02:43 +0000 http://www.designmom.com/?p=4211#comment-36409 One of my favorite parts of mothering is hearing my children pray for one another. Thank you for sharing your story and Lucy’s story. It reminded me to be thankful for all my kids can do – and have done.

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By: Denise Metzger http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-36335 Denise Metzger Sat, 08 May 2010 16:34:14 +0000 http://www.designmom.com/?p=4211#comment-36335 So thankful that you shared your story for all of us who may take for granted the health and well being of our children. I Am a single , adoptive mom of 3 who were cocaine positive at birth and amazingly healthy and well! Sharing helps others when they least expect it.

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By: lynne http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-35811 lynne Fri, 07 May 2010 05:10:36 +0000 http://www.designmom.com/?p=4211#comment-35811 What a moving story and what a beautiful little girl… (and I want to say how much I love Shawni and Linda’s book, A Mother’s Book of Secrets – )

Thanks, Shawni! You Eyre girls are amazing.

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By: Sarah @ Clover Lane http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-35332 Sarah @ Clover Lane Thu, 06 May 2010 21:06:24 +0000 http://www.designmom.com/?p=4211#comment-35332 I love Shawni’s blog…she is such an inspiration in the way she embraces motherhood..no matter what it brings her!

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By: Emily http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-34682 Emily Thu, 06 May 2010 13:35:59 +0000 http://www.designmom.com/?p=4211#comment-34682 You have a beautiful story. Your daughter is lovely. I don’t know your religion, but I wanted to share with you that in the Catholic faith, St. Lucy is the patron saint of blindness and those with eye troubles. The name Lucy means “light”.
Thank you for sharing your story and may God bless you and your family.

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By: Wendy @ The Shabby Nest http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-34677 Wendy @ The Shabby Nest Thu, 06 May 2010 03:51:46 +0000 http://www.designmom.com/?p=4211#comment-34677 I have known Shawni for many years….I have always been impressed by her spirit. She is an amazing mother, and the way she and her family have dealt with Lucy’s syndrome is inspirational to me.

I too have a dramatic “after-birth” story with my youngest son who came into this world seemingly perfect, but was diagnosed a few weeks after his birth with a liver defect called Alpha-1 Antitrypsin deficiency. This diagnosis led us to test our other 3 children…2 of which also have the disease. And so I echo what Shawni says, that something being “wrong” with your child can strengthen you and your family in ways you never knew possible.

Thank you for this post.

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By: abby http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-34675 abby Thu, 06 May 2010 00:45:46 +0000 http://www.designmom.com/?p=4211#comment-34675 You are an amazing mom. I don’t need to “know” you to be able to tell you this. As a mother of two boys, I cried through your post. Thank you for sharing and reminding of us all there is to be grateful. Many blessings and healing to Lucy and your family.

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By: artfulife http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-34674 artfulife Thu, 06 May 2010 00:00:19 +0000 http://www.designmom.com/?p=4211#comment-34674 What a sweet story. We all want so much for our little ones. It is so hard when they have an illness or life altering condition & is so important to count our many blessings and be thankful for the good in our lives. Thanks for sharing your beautiful story.

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By: Meredith http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-34668 Meredith Wed, 05 May 2010 20:33:50 +0000 http://www.designmom.com/?p=4211#comment-34668 I remember when baby Lucy was born. I have been a casual acquaintance of Shauwni for a few years and our daughter’s were in dance class together. That little extra toe on that adorable little Lucy was just too cute! But as she describes, as things just weren’t right, I have seen miracles, not miracles of a cure but miracles of faith and endurance and strength. I have watched Shawni and her family thru her blog and occasional social visits and am in constant awe of her perspective and strength as a mother and her family around her. She truly is one of my biggest heroes. Thanks for sharing!!

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By: Barchbo http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-34667 Barchbo Wed, 05 May 2010 20:32:02 +0000 http://www.designmom.com/?p=4211#comment-34667 Oh, that gorgeous girl! I just want to kiss and squeeze those cheeks. And she was obviously born into the most perfect family for her. I sometimes think that is the greatest miracle of all.

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By: Leigh Moore http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-34666 Leigh Moore Wed, 05 May 2010 20:30:03 +0000 http://www.designmom.com/?p=4211#comment-34666 Thanks for sharing this…I enjoy reading your blog and wish you and Lucy and the rest of the toes all the best. :)

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By: jenny http://www.designmom.com/2010/05/birth-story-from-shawni-pothier/comment-page-1/#comment-34665 jenny Wed, 05 May 2010 20:25:16 +0000 http://www.designmom.com/?p=4211#comment-34665 I’ve said it before…and I’ll say it again,
Lucy is lucky {blessed} to have you: A mother who will fight for her–the right diagnosis, break-through, therapy, every little milestone…every little everything.
And, as you said–your family is lucky {so blessed} to have her. It WILL make your family stronger and better.

~best wishes :)

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